Europe: Creating a digital hub for patients and caregivers
T2EVOLVE is a consortium working to accelerate the process of developing CAR T-cell therapy in the European Union (EU) to support patient access to this type of technology, while providing guidance on costs and implementation for EU healthcare systems.152
As part of their program, the consortium is developing a central digital hub for patients and caregivers, co-created with leading European patient advocacy groups and clinicians involved in CAR T-cell therapy. This will build on their existing patient hub, containing patient information resources co-created with Working Group of Patients and Caregivers (WGPC), EuroGCT, Acute Leukemia Advocate Network (ALAN), Myeloma Patients Europe (MPE) and Lymphoma Coalition.156 This additional platform aims to provide accessible, multilingual educational resources, practical guidance and support tools to empower patients and caregivers, thus enhancing patient’s understanding of their CAR T-cell therapy journey.157
References
152 Information provided by T2EVOLVE representatives – personal communication
156 CMS. Fiscal Year (FY) 2021. Medicare Hospital Inpatient Prospective Payment System (IPPS) and Long Term Acute Care Hospital (LTCH) Final Rule (CMS-1735-F). Available online: https://www.cms.gov/newsroom/fact-sheets/fiscal-year-fy-2021-medicare-hospital-inpatient-prospective-payment-system-ipps-and-long-term-acute-0
157 T2EVOLVE. Patient Hub: What is CAR T-cell treatment? Available online: https://t2evolve.com/information-for-patients/what-is-car-t-cell-treatment/